Thursday, 2 May 2013

Long overdue update

So much has happened this year already I don't know where to begin....

*tumour markers started to go up so reviewed oral chemo and decided on an iv alternative called Gemcitabine

*had some really really bad days

*playcentre rocks as usual

*decided to move to Whitianga after bad days - need support as my friend who supports me is going to be moving to Australia

*moved to Whitianga

*changed onco, health board, gp everything.   New onco really really good.

*added carboplatin into chemo as BRCA positive

*having regular x-rays and tumours decreasing visually even though markers say otherwise

*Charlie started school, Raife at Steiner Kindy 5 days, Bastian at playcenter 3 days

*Chemo 2 weeks on, 1 week off

That's pretty much the gist of it in terms of facts.  Emotionally it's been a roller coaster - when the markers went up, when the tumors went down, moving away from all our friends, meeting new people, chemo IV again, Charlie at an area school with 800 kids and a uniform (a real struggle from someone who wanted to homeschool), and Raife wanting to be at kindy 5 days a week.

There has been so much it's a bit overwhelming.  We started counselling but she seems to want to discuss everything except cancer so far.  I'm not sure I'm ready to talk about the 'what if I die' stuff.  It kind of seems moot because really, if I die I won't be worried about it anymore.  I can't help that part except to do everything I can to ensure dying is a long long time away.

Everybody dies, nobody knows when.  I could get hit by a car tomorrow.  Live now as best I can and pray for some more of the miracle I am having.

xxxx

34 comments:

  1. Glad to see you're back! Keep going and don't give up!!!
    XOX

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  2. Hey Jaynie, think about you often and have been wondering how you're getting along down in Whitianga - nice seeing pics on FB. Glad you like your new oncologist and that it seems like the boys are settling in. Hugs to you and family.
    xCharlotte

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  3. Ditto the comment above. Think about you often and have been waiting and checking this blog for an update. Hugs from me xx Tara

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  4. Hey Jaynie - just caught up with your latest post. Good to hear from you. You and your family have had a busy year so far. Lots of change - and it sounds like lots of changes from how you'd envisioned your life - great that you're sounding clear despite the challenges. Sending love and positive thoughts your way from Auckland.

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  6. Hi Jaynie, Daniel and boyz
    Missing you all heaps, empty house now so you can visit with us, seems like forever since we saw you all, love you all from far away and keep on getting better, glad you blogged all the updates for us
    xx Marg et al

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  7. I recently saw a testimony about this spell caster, before that, my problem was that, A guy i who have been dating me for 8 months departed from me because he fell in love with someone else, I was so hurt and depressed. so a friend suggested the idea of contacting a spell caster, which I never thought of myself. after i contacted dr.marnish@yahoo.com for his help. I asked him to do a love spell for me so that my lover can come back to me, but before the spell was done, I was a bit skeptical about his capacity to bring my man back to me. Only 3 days after the spell was actually cast, my lover returned to me and since then, it seems that there is no more mistrust and no more lies between us. He doesn't cheat me now. Also, I feel no heartache anymore For that reason, I will never forget the good Dr Manish did to me, there is no word to say how grateful I am for returning my lover back to me, I am gladly leaving a testimonial on this page,
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  8. Hello. Please please look up geopathic stress.
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  9. Hi there,
    I have a quick question about your site! Please email me when you get a chance.
    Susan

    susanvento@cancervictimsrights.org

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  10. HI Jaynie
    I met you when you were a trainee midwife and I was support person at my friend's birth. I have been wondering how you are doing. I am so sorry for your plight. Boo hiss BIG TIME. I want you to know that you are thought of often and I wish you the best in everything. I will continue to send positive healing vibes and warm thoughts and virtual hugs.

    (It seems there is a lot of shit spammy commenting that goes on with this blog. That must be annoying.You might have to apply word verification or something. I think they mass spam bomb on any blog that features the word cancer. )

    ANyway. It sure is a roller coaster for you. Having to make changes and decisions that you never ever would have signed up for. You are in my thoughts. I read through your whole story and my heart is breaking for you and your family. YOu are having to be so strong, and you are an amazing woman.
    Love and light to you, Linda (Hamilton)

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  11. Jist wondering how you are doing, Jaynie! Hopefully you are still doing well. Lots of love from Northern California! ♥

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  12. Hi Jaynie, I've also been wondering how you have been getting on, hope you are okay and making the most of every day with your wonderful sense of humour shining through. One of "your" babies is nearly 9, I'm letting her get her ears pierced soon, can't believe it has been nearly 9 years since you delivered her! Thinking of you.

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  13. Rest in peace Jaynie, you were an inspiration for others, will miss you lots beautiful angel x

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  14. Hmm, did my comment work? Amazing curing cancer series, so much hope here! Please watch, free for this weekend. After episode 3 it is amazing and so inspiring!!! http://thetruthaboutcancer.com

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  15. Cured of TNBC!
    I want to take this time out as a cancer survivor to encourage women out there still suffering from this with my story on how i got a cure. The sad news about it is that i was diagnosed on my 36th birthday in 2008 and with stage 3 TNBC which after i made research was a very aggressive form of cancer at that point i decided and told myself i was going to die and that the end has finally come. All my life i never thought of having breast cancer because i was very active and i worked out at the gym several times every week and my diet was okay. In my search for a cure after 6 years of diagnosis and even after chemo which i did twice spending thousands of dollars but to no avail, until a church member told me all about Dr Aleta a herbal doctor that specializes in treating TNBC, who could help me with a permanent cure, i doubted this at first but i later gave it a try following her methods and instructions. It took 3 months and after it all i felt normal but still went for diagnosis and i was clean today i am proud to say i am a cancer survivor no nodes and i am totally free the new diagnosis confirmed it. Do not die in silence or ignorance because of breast cancer just simply reach her on aletedwin@gmail.com don't be shy just speak to her today.

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  17. ALL THANKS TO DR WILLIAMS FOR GETTING MY WIFE OUT OF FIBROID WITH HIS HERB One of the greatest moments in this world is when you see your own wife put to bed, this awesome moments makes you a man and not just a man a real man. My wife suffered from Fibroid which made her unable to get pregnant and give us a child for almost 18 years with multiple surgeries done and none seemed to help the situation. I almost gave up but due to the love i had for her because i married her a virgin i had to find a way to help her. I told a member of my church who recommended Dr. williams to me, i contacted him and he sent me a medicine and this medicine shrinked it naturally in a weeks it was like magic but it's science. I am happy writing this because he delivered a baby girl. Do not loose hope too soon contact him on drwilliams098765@gmail.com and i am confident he will help you too.

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  18. This comment has been removed by the author.

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  19. ALL THANKS TO DR WILLIAMS FOR GETTING MY WIFE OUT OF FIBROID AND FALLOPIAN TUBE BLOCKAGE WITH HIS HERB One of the greatest moments in this world is when you see your own wife put to bed, this awesome moments makes you a man and not just a man a real man. My wife suffered from Fibroid and Fallopian tube blockage which made her unable to get pregnant and give us a child for almost 18 years with multiple surgeries done and none seemed to help the situation. I almost gave up but due to the love i had for her because i married her a virgin i had to find a way to help her. I told a member of my church who recommended Dr. williams to me, i contacted him and he sent me a medicine and this medicine shrieked it naturally in a weeks it was like magic but it's science. I am happy writing this because he delivered a baby girl. Do not loose hope too soon contact him on drwilliams098765@gmail.com and i am confident he will help you too.

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  20. thanks to Dr williams, who cured me of Fallopian tube blockage and fibroid. i married for over 15 years without a child of my own. because of the problem with my Fallopian tube and fibroid, until i came in contact with Dr williams testimony and recommendations online, on how he has cured and healed so many people of the same problem and i decided to contact him,and explane my situation to him,few days later he sent me some herbal portion which i took for 21 days, and i became pregnant after taking dr williams herbal medicine in three months time. in casse you want to reach him for a similar problem, you can contact him on his email: drwilliams098765@gmail.com for advice and for his product

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  21. Informative Thanks for sharing

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  22. MY NAME IS KAREN.ALL THANKS TO DR WILLIAMS WITH HIS HERBAL PORTION I WAS COMPLETELY CURED FROM FIBROID
    I can’t believe this. A great testimony that i must share to all fibroid patient in the world. i never believed that their could be any complete cure for fibroid with out going for surgery ,i saw people’s testimony on blog sites and Facebook page of how Dr williams prepare herbal cure for diferent king of disease,and with the help of his herb they where able to shrink there fibroid naturally. i had to try it too and you can,t believe that in just few weeks i started using it all my pains stop gradually . Right now i want to tell you all that i just give birth to a baby boy last month,and on thin now i have not had any pain, and i have just went for text last week and the doctor confirmed that there is no trace of any fibroid in my system . Glory be to God for leading me to this great Dr williams I am so happy as i am sharing this testimony. My advice to you all who thinks that their is no herbal cure for fibroid that is Not true ,just contact him and get cure from his email drwilliams098765@gmail.com and you will be free and free forever, Try it and you will not regret it because it truly works. i hope to see your testimony soon.

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  23. I am Matthias lang, from Orlando u s a, i was diagnosed with FIBROID for 6 years, i lived in pain with the knowledge that i wasn't going to ever give birth, i contacted so many doctors on this issue,and i have use so many western drugs prescribe by various doctors and all was no avail, because i was determined to get my life back, one day i was researching for this on internet and i saw a post about devansh herbal health care who cure different manners of diseases, including fibroid, I contacted them via email: devanshherbalheathcare@gmail.com and made purchase of the fibroid herb, i received the herb through USPS within 24 hours, when i received the herb i applied it as prescribed and i was totally cured of fibroid within 1 months of usages,and to god be the glory i give birth to a boby boy,and on thin now i have never experience any pain in my body again,few days later i went back to my doctor and he confirmed i was completely cured from fibroid, am so happy now, You do not have to suffer more just contact him for his medicine on devanshherbalheathcare@gmail.com.com he will definitely put an end to that problem of yours

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  24. I GIVE THANKS TO DR WILLIAMS FOR GIVING ME LIFE.
    He helped me with a fast cure to fibroid,and the size of it was .7cm, Then I started taking the medication for only one month, and now am completely cured from it. I was able to make it without any surgery, now I can live like every normal human and I can eat any food of my choice If you need such help, contact him via mail on drwilliams098765@gmail.com for advice,i hope this also help some one out there.

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  25. AM KAREN DISH BY NAME
    I GIVE ALL THANKS TO DR WILLIAMS WITH HIS HERBAL PORTION I WAS COMPLETELY CURED FROM FIBROID
    I can’t believe this. A great testimony that i must share to all fibroid patient in the world. i never believed that their could be any complete cure for fibroid with out going for surgery ,i saw people’s testimony on blog sites and Facebook page of how Dr williams prepare herbal cure for diferent king of disease,and with the help of his herb they where able to shrink there fibroid naturally. i had to try it too and you can,t believe that in just few weeks i started using it all my pains stop gradually . Right now i want to tell you all that i just give birth to a baby boy last month,and on thin now i have not had any pain, and i have just went for text last week and the doctor confirmed that there is no trace of any fibroid in my system . Glory be to God for leading me to this great Dr williams I am so happy as i am sharing this testimony. My advice to you all who thinks that their is no herbal cure for fibroid that is Not true ,just contact him and get cure from his email drwilliams098765@gmail.com and you will be free and free forever, Try it and you will not regret it because it truly works. i hope to see your testimony soon.

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  26. Hello viewers all over the world am marian jack, I want to testify of what Dr davismartin did for me. i was having a very notorious and serious sickness called fibroid and i was very in lost of hope i never believed i was going to be cured until i meant these great man called dr davismartin who God sent to help me cure my sickness . just a few moment with these great man he cured my infection His herbal remedy is the only permanent solution to fibroid. i want you to know that all hope is not lost until every thing is done if you also have these following infections contact his email drdavismartin62@gmail.com

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  27. I GIVE THANKS TO DR WILLIAMS FOR GIVING ME LIFE.
    He helped me with a fast cure to fibroid,and the size of it was .7cm, Then I started taking the medication for only one month, and now am completely cured from it. I was able to make it without any surgery, now I can live like every normal human and I can eat any food of my choice If you need such help, contact him via mail on drwilliams098765@gmail.com for advice,i hope this also help some one out there.

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  28. MY NAME IS NITA.

    Dr Williams,herbal treatment is the best to shrink fibroid naturally.

    Four months ago, I was scheduled an operation to remove a fairly large uterine fibroid (approx. 8 cm), which had caused me a great deal of pelvic pain and pressure on my bladder. My doctor insisted that there was no other choice but to go under the knife and I had reluctantly agreed (after trying several medications to decrease the size of the fibroid to no avail). It was approx. 2 months prior to the surgery when my husband comes across dr williams herbal remedies which my husband found and ordered for me online. With the help of my loving husband, I followed the step and procedure on how i should be taking it. and one months later I was scheduled for an ultrasound check: it was shocking. The fibroid had completely gone, I had consulted my doctor and cancelled the surgery and with your dedicated counseling guidance I managed to completely treat the fibroid from my uterus, along with the pain and anxiety that this condition had inflicted on me. Thank you so much for your kind help,any body with similar problem should contact him on his email address drwilliams098765@gmail.com his a good man.

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  29. how my wife was been cured from fibroid.
    greetings from Leo my wife Emily have been suffering from fibroid for so many years now and we literally tried everything but nothing since to help,the pain she use to experience we keep her up all night she was debilitating.she have to take time off from work on many occasion i did no what to do to help i felt completely helpless.every doctor we went to only have pain med to offer.my wife have been taking med to alleviate the pain for a while now and have develop a tolerance to them. the doctor said that she we require an increase dose of the meds for them to have any measurable effect.the last thing we wanted was for her to become dependent of those darn drugs.i spent countless hours online researching natural way to treat fibroid but found no clear cut comprehensive guide on how to go exactly doing it,it wasn't until we found Dr Williams herbal medicine and have watched all the video that i think it started to make sense.i order for it online after my wife started using Dr Williams herbal medicine for a couple of weeks now she feeling a million time better she doesn't complain about the pain anymore and sleep through out the night.her energy level is rising every single day, and it only been a few weeks,fibroid is no longer an every day topics of discussion in the house and we both confident that her overall health we continue to improve,after taking Dr Williams herbal medicine she is now fibroid free,its a major relief for the both of us.we are so grateful for your treatment cant thank you enough you can email him for more information on how to get his medicine drwilliams098765@gmail.com

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  30. thanks Dr William this is great.

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  31. I pray you will get over it all and will be free from cancer.

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  32. Get well, everything is possible in God's name. TRUST I HIM. http://estates.uonbi.ac.ke/

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  33. thanks to dr Williams i never believe he we have the herbal medicine to cancer,i just wanted to give a try after taking dr Williams herbal medicine am now also free from breast cancer.

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